ASH REGISTRY INC

WASHINGTON, DC, 20036-4929 (202) 776-0544 Est. 2017 EIN 82-4218205
U20— Science & Technology Form 990 501(c)(3)
WWW.ASHRESEARCHCOLLABORATIVE.ORG

Mission

COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.

Giving Portfolio

Total Grants
33
Total Giving
$2.8M
Recipients
31
Years Active
2022 - 2023
Avg grant: $79,523 Median: $80,405

Yearly Trends

YearGrantsTotal Giving Avg GrantNewRepeat
202313$758K $58K111
202220$2.0M $101K190

Sectors Funded

Education
15
Health Care
9
Public & Societal Benefit
2

Top States

North Carolina
4
California
4
New York
4
Texas
3
Alabama
2
Ohio
2
Missouri
2
Illinois
2
and 7 more states

Grantee Size Profile

Over $50M
20

Top Grantees

UNIVERSITY OF ALABAMA AT BIRMINGHAM
AL - 2 grants
$250K
MO - 2 grants
$199K
$175K
UNIVERSITY OF CONNECTICUT HEALTH CENTER
CT
$168K
NC - 2 grants
$163K
$158K
and 11 more grantees

Grants Awarded · 28 grants

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Financials

Total Revenue
$2,978,964
Total Expenses
$9,678,120
Net Assets
$-42,547,876
85 volunteers
From latest filing (tax period ending 2024-06-30)

Financial Health

Operating Reserve
52.8 months deficit Deficit
Net assets / monthly expenses
Year-over-Year Change
Revenue ↓ 7.6%
Expenses ↓ 12.5%
Revenue Sources
Contributions 87.2% Earned revenue 12.8%
Expense Breakdown
Program 79.1% Management 20.9%

Officers & Trustees (28)

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Filing History (5 filings)

YearRevenueExpensesNet Assets
2023 Form 990$2,978,964 $9,678,120$-42,547,876
2022 Form 990$3,222,521 $11,062,353$-35,848,720
2021 Form 990$1,021,874 $10,089,564$-28,008,888
2020 Form 990$1,111,574 $7,388,211$-18,941,198
2019 Form 990$0 $8,530,430$-12,664,561

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EIN: 82-4218205 · Source: IRS Form 990 e-file data