CONGENITAL HYPERINSULINISM INTERNATIONAL

GLEN RIDGE, NJ, 07028-0135 (973) 566-0334 Est. 2006 EIN 20-3068945
G12— Diseases & Disorders Form 990 501(c)(3)
www.congenitalhi.org

Mission

Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the beta cells of the pancreas secrete too much insulin in an unregulated manner. Excess insulin causes hypoglycemia. Prolonged or severe hypoglycemia can cause seizures, permanent brain damage, or even death if left untreated. A good prognosis is far more likely with a timely diagnosis and proper management.

Financials

Total Revenue
$1,275,774
Total Expenses
$1,126,855
Net Assets
$1,853,453
9 employees 130 volunteers
From latest filing (tax period ending 2024-12-31)

Financial Health

Operating Reserve
19.7 months Healthy
Net assets / monthly expenses
Year-over-Year Change
Revenue ↑ 10.9%
Expenses ↑ 8.0%
Revenue Sources
Contributions 20.4% Earned revenue 76.7% Investment 5.0%
Expense Breakdown
Program 88.1% Management 5.3% Fundraising 6.6%

Officers & Key Employees (10)

We treat individual compensation with extra care. Named amounts are on Grow plans.

Grants Received (15)

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Filing History (5 filings)

YearRevenueExpensesNet Assets
2024 Form 990
Jan 1, 2024 to Dec 31, 2024
$1,275,774 $1,126,855$1,853,453
2023 Form 990
Jan 1, 2023 to Dec 31, 2023
$1,150,291 $1,043,446$1,704,534
2022 Form 990
Jan 1, 2022 to Dec 31, 2022
$1,262,625 $834,055$1,597,689
2020 Form 990
Jan 1, 2020 to Dec 31, 2020
$707,807 $467,697$822,508
2018 Form 990
Jan 1, 2018 to Dec 31, 2018
$355,579 $382,051$610,210

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EIN: 20-3068945 · Source: IRS Form 990 e-file data