TO IMPROVE HEALTH AND LONGEVITY AND LOWER COSTS OF CARE; BY PROVIDING EDUCATION, SUPPORT, AND SERVICES TO DELIVER COMPREHENSIVE CARE FOR PATIENTS AND THEIR FAMILIES WITH RARE, CHRONIC INHERITED BLOOD DISORDERS.
| Year | Grants | Total Giving | Avg Grant | New | Repeat |
|---|---|---|---|---|---|
| 2023 | 23 | $3.7M | $162K | 1 | 22 |
| 2022 | 23 | $14.3M | $622K | 5 | 18 |
| 2021 | 35 | $7.7M | $220K | 1 | 17 |
| 2020 | 37 | $5.1M | $138K | 0 | 17 |
| 2019 | 39 | $4.3M | $109K | 1 | 17 |
| 2018 | 40 | $1.3M | $33K | 0 | 19 |
| 2017 | 35 | $1.1M | $31K | 20 | 0 |
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2023 Form 990 | $23,337,253 ↑ | $16,931,546 | $50,331,932 |
| 2022 Form 990 | $20,062,547 ↑ | $18,826,320 | $42,075,695 |
| 2021 Form 990 | $12,142,094 ↑ | $15,472,104 | $40,839,468 |
| 2020 Form 990 | $11,525,331 ↓ | $14,614,485 | $45,704,280 |
| 2019 Form 990 | $68,646,232 ↓ | $71,221,235 | $48,793,434 |
| 2018 Form 990 | $72,084,713 ↑ | $51,953,005 | $51,368,437 |
| 2017 Form 990 | $61,281,622 | $40,887,659 | $31,236,729 |
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